How to Tell When We Will Die
On Pain, Disability, and Doom
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"A book for the moment and for the ages. It's questing, pissed, propulsive, funny, generous, pervy, and original--full of love and pain in all their entwined glory."--Maggie Nelson, author ofThe Argonauts
The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.
In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can't get out of bed? It was not long before this essay, "Sick Woman Theory", became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism--a system that limits our worth to the productivity of our bodies--we must reach for the revolutionary act of caring for ourselves and others.
How to Tell When We Will Dieexpands upon Hedva's paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal--from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America's byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness--relying on and fueling ableism--to the detriment of us all.
With the insight of Anne Boyer'sThe Undyingand Leslie Jamison'sThe Empathy Exams, and the wit of Samantha Irby, Hedva's debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.
About this Author
Johanna Hedva(they/them)is a Korean American writer, artist, and musician who was raised in Los Angeles by a family of witches and now lives in LA and Berlin. They are the author of the novelsYour Love Is Not GoodandOn Hell, and the collection of poetry, performances, and essays,Minerva the Miscarriage of the Brain. Their artwork has been shown internationally, and their albums areBlack Moon Lilith in Pisces in the 4th HouseandThe Sun and The Moon.
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