The Revised Fundamentals of Caregiving
A Novel
Description
For Ben Benjamin, all has been lost-his wife, his family, his home, his livelihood. Hoping to find a new direction, he has enrolled in a night class called the Fundamentals of Caregiving. There he learns the basics of the art of inserting catheters while avoiding liability, and he is instructed about professionalism and how to keep an emotional distance between client and provider.
But when Ben is assigned his first client-a tyrannical nineteen-year-old boy named Trevor who is in the advanced stages of Duchenne muscular dystrophy-he soon discovers that the endless service checklists have done nothing to prepare him for the reality of caring for a fiercely stubborn, sexually frustrated teenager who has an ax to grind with the whole world.
Over time, the relationship between Ben and Trev, which had begun with mutual misgivings, evolves into a close friendship, and the traditional boundaries between patient and caregiver begin to blur. The bond between them strengthens while they're on a road trip to visit Trev's ailing father-a journey diverted by a series of bizarre must-see roadside attractions that propels them into an impulsive adventure disrupted by one birth, two arrests, a freakish dust storm, and a six-hundred-mile cat-and-mouse pursuit by a mysterious brown Buick Skylark. By the end of that journey, Trev has had his first taste of love, and Ben has found a new reason to love life.
Bursting with energy and filled with moments of absolute beauty, this big-hearted and inspired novel ponders life's terrible surprises as well as the heart's uncanny capacity to mend.
About this Author
Reviews
With its extremely cinematic plot and collection of quirky scenes, the novel might remind you of Little Miss Sunshine meets Rain Man . . . The Revised Fundamentals of Caregiving is even-keeled, big-hearted, and very funny, and full of hope. -- The Boston Globe
Grimly hilarious, and the novel culminates with a classic road trip across the American West. Mr. Evison injects a wonderful amount of feeling into those empty highways and dingy rest stops. -- The Wall Street Journal
An entertaining picaresque and a moving story of redemption. -- The New Yorker
It's moving and funny, and, my God, how refreshing it is to read a story about someone caring for a disabled person that isn't gauzed in sentimentality or bitterness. . . . [Evison] had me alternately chuckling and wiping my eyes through much of his book. -- The Washington Post
Evison is one of the sharpest writers around, and proves it in pretty much every line of this funny, brassy, unflinching tale. . . . Nothing sentimental about this book, just good, honest, punch-to-gut emotion, with amazing adventures and revelations along the way. -- Ben Fountain, for The Millions
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